The Daily Mirror, UK. 9th April 1998.
An article about a book that was about to be released by Simon Wessely.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
@rfh1955
#cfsme
2 posts2 participants0 posts today
When I work with kids and teens I often ask if they are a cheese-a-saurus, when I'm getting their diet history. And even though this neologism makes no sense, they usually laugh and affirm that they are. I'm not asking it to shame, I'm asking to figure out how much of their diet is coming from dairy. Dairy is rich in nutrients like protein, calcium, Vitamin A, B12 and phosphorus.
I'm a bread-a-saurus. Bread is a staple in many cultures and can be equally nutrient dense (depending on the recipe of course). Because I'm a bread-a-saurus I make mine from scratch with Einkorn flour and pumpkin seed protein. I think this loaf turned out especially good and it has about 7-10 grams of protein per slice, which helps me meet my protein goals when I'm only feeling like eating my safe foods.
Bon appetit friends!
#neurodivergent #neurocomplex #dietitian #sensoryfriendly #oregon #newmexico #lowhistaminediet #lowhistamine
#lowfodmap #ibs #ibsdiet
#sensoryprocessingdisorder #functionaldietitian #nutritionist #adhd #audhd #autism #chronicfatigue #myalgicencephalomyelitis #cfsme #integrativenutrition #holisticnutrition #healthyeating #highlymaskedautism #healthyfood #autisticadults #autistic #fibromyalgia #pots #eds #migraine #actuallyautistic
This content is for informational purposes only and is not a substitute for professional medical advice. Always consult a qualified healthcare provider for personalized guidance.
I'm a bread-a-saurus. Bread is a staple in many cultures and can be equally nutrient dense (depending on the recipe of course). Because I'm a bread-a-saurus I make mine from scratch with Einkorn flour and pumpkin seed protein. I think this loaf turned out especially good and it has about 7-10 grams of protein per slice, which helps me meet my protein goals when I'm only feeling like eating my safe foods.
Bon appetit friends!
#neurodivergent #neurocomplex #dietitian #sensoryfriendly #oregon #newmexico #lowhistaminediet #lowhistamine
#lowfodmap #ibs #ibsdiet
#sensoryprocessingdisorder #functionaldietitian #nutritionist #adhd #audhd #autism #chronicfatigue #myalgicencephalomyelitis #cfsme #integrativenutrition #holisticnutrition #healthyeating #highlymaskedautism #healthyfood #autisticadults #autistic #fibromyalgia #pots #eds #migraine #actuallyautistic
This content is for informational purposes only and is not a substitute for professional medical advice. Always consult a qualified healthcare provider for personalized guidance.
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2/
Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath
#MyalgicE #MEeps #CFSME #LongCovid #NeuroME #mecfs
@mecfs #longcovid @longcovid
#neurodivergent #neurocomplex #dietitian #sensoryfriendly #oregon #newmexico
#functionaldietitian #nutritionist #adhd #audhd #autism #chronicfatigue #myalgicencephalomyelitis #cfsme #integrativenutrition #holisticnutrition #healthyeating #highlymaskedautism #twiceexceptional #healthyfood #autisticadults #autistic #stim #fibromyalgia #pots #eds #migraine #actuallyautistic
#functionaldietitian #nutritionist #adhd #audhd #autism #chronicfatigue #myalgicencephalomyelitis #cfsme #integrativenutrition #holisticnutrition #healthyeating #highlymaskedautism #twiceexceptional #healthyfood #autisticadults #autistic #stim #fibromyalgia #pots #eds #migraine #actuallyautistic
Continued thread
Continued thread
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf
#MyalgicE #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid @mecfs #MEcfs #CFS #PwME @longcovid
#LongCovid
"A suicide note was found in the back of her parents' car".
The Daily Echo, Bournemouth, England. 18th February 2016.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
@rfh1955
Royal Free 1955 @rfh1955.bsky.social
The Sunday Mercury, Birmingham, England. 15th February 1998. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
The Los Angeles Times. 12th February 1970. Another paper carrying the Alfred Friendly piece on 'Reconsideration'. Interesting that only one UK paper (Sunday Times) carried an article on Beard/McEvedy.
#rfh1955
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
Continued thread
10/
“You can help support patients to handle this life transition, the grief, the stress that comes from having this illness without removing it.”
"As Rising Numbers Deemed Unfit For Work"
Did you read this? All of it?
Hmmm. I wonder what has been going on for the past 5 years...
"They also believe that there has been a complete failure to keep in touch with those currently deemed too sick to work and believe that there is mounting evidence that even the simplest conversations with work coaches can have a positive impact."
Work coach? Would that be like "Come on, you can do it. It's not as bad as you think. .. Pull yourself together."
?
#CovidIsNotOver #covid #LongCOVID #me #cfsme #uk
https://www.theguardian.com/politics/2025/feb/08/labour-planning-radical-overhaul-of-benefit-system-as-rising-numbers-deemed-unfit-to-work
The Guardian · Labour to ‘fix benefit system to get people back into work’
The Evening Telegraph, Derby, England. 3rd February 1993. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
The Irish Daily Star. 3rd February 1993. An article about 'TATT'. The Star asks Wessely colleague Anthony David to comment on it.
Another relatively early mention of the term #myalgicencephalomyelitis in the UK press from this day, forty-two years ago.
The Guardian, UK. 2nd February 1983. #mecfs #cfsme #myalgice
@rfh1955
"This trendy nebulous disease persists".
"I'm pissed off and angry that I can't celebrate my life and do the things I want to do".
The Toronto Star, Canada. 2nd February 1989. #mecfs #cfsme #myalgicencephalomyelitis
@rfh1955
Thoroughly-referenced (590) paper on " #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome : the biology of a neglected disease"
https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1386607/full
FrontiersFrontiers | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected diseaseMyalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating disease characterised by a wide range of symptoms that severely impact...
The Daily Telegraph, UK. 26th January 2010. The case of Lynn Gilderdale.
"Keir Starmer, the Director of Public Prosecutions...had taken the decision to pursue the attempted murder charge in November".
Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals
Duh! 
https://www.sciencealert.com/chronic-fatigue-syndrome-has-surged-since-the-pandemic-study-reveals
ScienceAlert · Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study RevealsScientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS).
Potentially harrowing tales of “Living with ME”…
#pwME
#MyalgicEncephalomyelitis #ME #MEcfs
#ChronicFatigueSyndrome #CFS #CFSme
Link to #WellcomeCollection’s website:
Wellcome CollectionLiving with MENine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.