31 Days of #EDS - Day 4: Light It Up Orange
https://competentgirl.wordpress.com/2025/05/04/myedschallenge4/
May is EDS awareness month in Massachusetts
https://ctdnewengland.org/2024/05/16/proclamation-for-eds-awareness-month-in-ma/
Ich möchte euch noch auf die Arte-Doku "Chronisch krank, chronisch ignoriert" hinweisen, die die Schwere der multisystemischen Erkrankungen #MEcfs und #LongCovid thematisiert, aber auch die Zusammenhänge zu den Erkrankungen #MCAS, #CCI, #EDS, #FQAD, #POTS etc.
Die Doku ist auf YouTube und in der Arte-Mediathek und zeigt eindrücklich das Leid der Betroffenen.
Wann passiert endlich etwas?
https://youtu.be/YnnDSHPaAsY?si=aSaNk1Mrt0TOyo6i
Today is the 1st of May, which means it's the start of Ehlers Danlos Syndrome and Hypermobile Spectrum Disorder Awareness Month!
Hello and solidarity to all of my zebra siblings 
I am a specialist in #Dermoneuromodulating, #Myofascial, #Neurofascial, and I’ve got a lot of personal & #professional experience working with people with #MCAS, #EDS, and other #disabilities.
When you’re healthy you believe you’ll always be healthy. That if you get sick it’ll be a temporary slow down & you will be back to normal after a few days.
When you learn that isn’t true, when you come face to face with the reality of how quickly you can lose your health, you become cautious.
This caution is part of protecting your baseline, and it’s a necessary survival skill when chronically ill.
https://www.disabledginger.com/p/maintaining-a-baseline-means-everything
National Herald case: Delhi court declines to take cognisance of ED's charge sheet against Sonia, Rahul #NationalHerald #Delhi #EDs #SoniaRahul #socialnewsxyz
(Worcester, Massachusetts)
Healthy Controls and people aged 12+ with ME/CFS, #POTS, #EDS, long Covid, etc sought for research study
Image is from MassME April Newsletter
https://www.massmecfs.org/newsletters/922-2025-04-april-newsletter
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#PosturalOrthostaticTachycardiaSyndrome @pots @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM
totally love it 
EDS is weird.
Sometimes I have to use a wheelchair because of fatigue and to prevent tired hips from just popping out.
If my hip goes it's better to use crutches because wheelchairing with a subluxed hip is harder than supported walking.
But today, because my shoulder recently popped out, I can't use a wheelchair or crutches because I need to rest my shoulder.
So I look less disabled BECAUSE I can't use one of my arms. :D I have to wear my special sunflower lanyard to signal my disability because I don't have mobility aids with me.
“Conclusions: The predisposition to anxiety in people with variant connective tissue reflects dynamic interactions between neural centres processing threat (amygdala) and representing bodily state (insular and parietal cortices). Correspondingly, interventions to regulate amygdala reactivity while enhancing interoceptive precision may have therapeutic benefit for symptomatic hypermobile individuals.” #EDS #CTD https://www.cambridge.org/core/journals/the-british-journal-of-psychiatry/article/neural-processes-linking-joint-hypermobility-and-anxiety-key-roles-for-the-amygdala-and-insular-cortex/32D1E47DA52705D1213B32C0650A8A7E
So I come to the hivemind:
do any of you all have any recommendations or favorite things that you have used on your own person to help keep you from accidentally injuring yourself?
Not just hands/fingers/wrists. But also arms/elbows, shoulders, knees and ankles.
