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Mastodon: AboutGet the appKeyboard shortcutsView source codev4.4.0-nightly.2025-04-01

#SJIA

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Grayson (he/him)<p>Possibly important info for <a href="https://mastodon.social/tags/SJIA" class="mention hashtag" rel="tag">#<span>SJIA</span></a> folks and others on <a href="https://mastodon.social/tags/Tocilizumab" class="mention hashtag" rel="tag">#<span>Tocilizumab</span></a> </p><p><a href="https://www.notstandingstillsdisease.com/2023/06/04/tocilizumab-hypofibrinogenemia/" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://www.</span><span class="ellipsis">notstandingstillsdisease.com/2</span><span class="invisible">023/06/04/tocilizumab-hypofibrinogenemia/</span></a></p>
Grayson (he/him)<p>AMAZING news for those of us with Systemic JIA, Adult Onset Still&#39;s Disease, or recurrent Macrophage Activation Syndrome!</p><p><a href="https://www.notstandingstillsdisease.com/2023/04/28/emapalumab-mas-remission/" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://www.</span><span class="ellipsis">notstandingstillsdisease.com/2</span><span class="invisible">023/04/28/emapalumab-mas-remission/</span></a></p><p><a href="https://mastodon.social/tags/SJIA" class="mention hashtag" rel="tag">#<span>SJIA</span></a> <a href="https://mastodon.social/tags/AOSD" class="mention hashtag" rel="tag">#<span>AOSD</span></a> <a href="https://mastodon.social/tags/MAS" class="mention hashtag" rel="tag">#<span>MAS</span></a> <a href="https://mastodon.social/tags/Rheumatology" class="mention hashtag" rel="tag">#<span>Rheumatology</span></a> <a href="https://mastodon.social/tags/PediatricRheumatology" class="mention hashtag" rel="tag">#<span>PediatricRheumatology</span></a></p>
Grayson (he/him)<p>Okay <a href="https://mastodon.social/tags/SJIA" class="mention hashtag" rel="tag">#<span>SJIA</span></a> adults or <a href="https://mastodon.social/tags/rheum" class="mention hashtag" rel="tag">#<span>rheum</span></a> docs that I know - </p><p>The fellow I&#39;m seeing is not understanding the need to have SJIA-specific meds. Normally, I&#39;m cool with seeing students BUT it&#39;s been three months of spacing out the last 2 weeks of anakinra I had while I wait on insurance to approve (which the office had not been on top of).</p><p>Fevers are coming back and it&#39;s A Lot.</p><p>Any <a href="https://mastodon.social/tags/Ohio" class="mention hashtag" rel="tag">#<span>Ohio</span></a> adult rheumy recs? Thanks in advance!</p>
Michael Ombrello<p>I am 👀 for post-doctoral fellows to join my team.</p><p>We study immunologic effects of novel genetic 🧬 mutations that we identify in people with inflammatory diseases like <a href="https://med-mastodon.com/tags/sJIA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>sJIA</span></a> <a href="https://med-mastodon.com/tags/AOSD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AOSD</span></a>.</p><p>We are seeking immunologists to build their careers unraveling disease mechanisms with us.</p>
Grayson (he/him)from the birb site
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