2/
Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath
#MyalgicE #MEeps #CFSME #LongCovid #NeuroME #mecfs
@mecfs #longcovid @longcovid
2/
From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf
#MyalgicE #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid @mecfs #MEcfs #CFS #PwME @longcovid
#LongCovid
"A suicide note was found in the back of her parents' car".
The Daily Echo, Bournemouth, England. 18th February 2016.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
@rfh1955
Royal Free 1955 @rfh1955.bsky.social
The Sunday Mercury, Birmingham, England. 15th February 1998. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
The Los Angeles Times. 12th February 1970. Another paper carrying the Alfred Friendly piece on 'Reconsideration'. Interesting that only one UK paper (Sunday Times) carried an article on Beard/McEvedy.
#rfh1955
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
10/
“You can help support patients to handle this life transition, the grief, the stress that comes from having this illness without removing it.”
"As Rising Numbers Deemed Unfit For Work"
Did you read this? All of it?
Hmmm. I wonder what has been going on for the past 5 years...
"They also believe that there has been a complete failure to keep in touch with those currently deemed too sick to work and believe that there is mounting evidence that even the simplest conversations with work coaches can have a positive impact."
Work coach? Would that be like "Come on, you can do it. It's not as bad as you think. .. Pull yourself together."
?
#CovidIsNotOver #covid #LongCOVID #me #cfsme #uk
https://www.theguardian.com/politics/2025/feb/08/labour-planning-radical-overhaul-of-benefit-system-as-rising-numbers-deemed-unfit-to-work
The Evening Telegraph, Derby, England. 3rd February 1993. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
The Irish Daily Star. 3rd February 1993. An article about 'TATT'. The Star asks Wessely colleague Anthony David to comment on it.
Another relatively early mention of the term #myalgicencephalomyelitis in the UK press from this day, forty-two years ago.
The Guardian, UK. 2nd February 1983. #mecfs #cfsme #myalgice
@rfh1955
"This trendy nebulous disease persists".
"I'm pissed off and angry that I can't celebrate my life and do the things I want to do".
The Toronto Star, Canada. 2nd February 1989. #mecfs #cfsme #myalgicencephalomyelitis
@rfh1955
Thoroughly-referenced (590) paper on " #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome : the biology of a neglected disease"
https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1386607/full
The Daily Telegraph, UK. 26th January 2010. The case of Lynn Gilderdale.
"Keir Starmer, the Director of Public Prosecutions...had taken the decision to pursue the attempted murder charge in November".
Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals
Duh! 
https://www.sciencealert.com/chronic-fatigue-syndrome-has-surged-since-the-pandemic-study-reveals
Potentially harrowing tales of “Living with ME”…
#pwME
#MyalgicEncephalomyelitis #ME #MEcfs
#ChronicFatigueSyndrome #CFS #CFSme
Link to #WellcomeCollection’s website:
<< Post-infectious diseases such as long Covid and ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) pose a puzzle to the medical establishment. Patients report debilitating symptoms such as extreme fatigue, shortness of breath or muscle pain, but often show normal results on routine medical checkups. And many sufferers do not look ill, leading some to question the severity of their disease. >>
