Tom Kindlon<p>2/<br>From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team <a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">pmc.ncbi.nlm.nih.gov/articles/</span><span class="invisible">PMC6468435/pdf/diagnostics-09-00026.pdf</span></a></p><p><a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a><br><a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> @longcovid<br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a></p>
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Tom Kindlon<p>2/</p><p>From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team <a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">pmc.ncbi.nlm.nih.gov/articles/</span><span class="invisible">PMC6468435/pdf/diagnostics-09-00026.pdf</span></a></p><p><a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a><br><a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mecfs</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <br><a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span></p>
Tom Kindlon<p>4/</p><p>An experienced lawyer offers advice on how to apply for disability benefits. Discussion includes both social security disability insurance (SSDI) and long term disability (LTD) plans covered by ERISA law. </p><p><a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/PostCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovid</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span></p>
bananabob :tinoflag:<p>An illness with no cure? Doctor believes he’s found the answer to chronic fatigue syndrome</p><p><a href="https://archive.ph/MpxXc" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">archive.ph/MpxXc</span><span class="invisible"></span></a></p><p><a href="https://mastodon.nz/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.nz/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://mastodon.nz/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://mastodon.nz/tags/Health" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Health</span></a> <a href="https://mastodon.nz/tags/Perrin" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Perrin</span></a></p>
Tom Kindlon<p>2/</p><p>A pilot cross-sectional investigation of symptom clusters & associations with patient-reported outcomes in <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> / <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> & <a href="https://disabled.social/tags/PostCOVID19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCOVID19</span></a> Condition</p><p>"None of the four symptom clusters identified were unique to ME/CFS or <a href="https://disabled.social/tags/PCC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PCC</span></a>"</p><p><a href="https://link.springer.com/article/10.1007/s11136-024-03794-x" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">link.springer.com/article/10.1</span><span class="invisible">007/s11136-024-03794-x</span></a> </p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroME</span></a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ME</span></a> <a href="https://disabled.social/tags/MyE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyE</span></a> <a href="https://disabled.social/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>millionsmissing</span></a></p>
Tom Kindlon<p>4/<br>One with full color, with no background music </p><p><a href="https://www.youtube.com/watch?v=00f6Yx9ab3I" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">youtube.com/watch?v=00f6Yx9ab3</span><span class="invisible">I</span></a></p><p><a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span></p>
Tom Kindlon<p>4/</p><p>“That said, everything I did took energy. Washing my teeth, energy. Dressing, energy. And there was no bank to run to asking for a loan. No friend with a basket of extras.”</p><p><a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mecfs</span></a></p>
Tom Kindlon<p>From: @Notjustfatigue</p><p>Is it a coincidence that three times more women than men are living with <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> and <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> is our country’s most underfunded disease, with respect to the severity of disease and the number of people affected? No. This is the seventh video in a ten part video series by <a href="https://disabled.social/tags/NotJustFatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NotJustFatigue</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroME</span></a></p><p>1/</p>
Tom Kindlon<p>2/</p><p>Elizabeth has posted this video already on her <a href="https://disabled.social/tags/Notjustfatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Notjustfatigue</span></a> social media accounts & has kindly given me permission to share it on some other social media platforms I'm on. Please do check out the website for her non-profit <a href="https://disabled.social/tags/Notjustfatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Notjustfatigue</span></a> <a href="https://www.notjustfatigue.org" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">notjustfatigue.org</span><span class="invisible"></span></a></p><p>Hashtags:<br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroME</span></a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ME</span></a> <a href="https://disabled.social/tags/MyE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyE</span></a> <a href="https://disabled.social/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>millionsmissing</span></a></p>
Irish ME/CFS Association<p>Just one week to go with Lee Colligan’s marathon 2500km walk around Ireland in memory of his brother and in aid of ME. </p><p>People can donate to us at <br><a href="https://www.idonate.ie/fundraiser/LeeColligan" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">idonate.ie/fundraiser/LeeColli</span><span class="invisible">gan</span></a></p><p>Donation link for Action for ME<br><a href="https://joshcolligan.muchloved.com/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">joshcolligan.muchloved.com/</span><span class="invisible"></span></a></p><p><a href="https://mastodon.ie/tags/SevereME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SevereME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span><br><a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://mastodon.ie/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://mastodon.ie/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://mastodon.ie/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://mastodon.ie/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroME</span></a> <a href="https://mastodon.ie/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>millionsmissing</span></a> <a href="https://mastodon.ie/tags/EndMECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EndMECFS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/severeme" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>severeme</span></a></span></p>
Tom Kindlon<p>2/<br>More info on this Open Medicine Foundation Australia project: "SPOT-ME: Serial Pediatric Omics Tracking for ME/CFS"</p><p>Aims include deeply profiling the biology of patients vs controls, testing cellular energy metabolism changes and evaluating brain function with MRI.</p><p><a href="https://www.omfaustralia.ngo/pediatrics-me-cfs-deep-omics-profiling-and-longitudinal-study/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">omfaustralia.ngo/pediatrics-me</span><span class="invisible">-cfs-deep-omics-profiling-and-longitudinal-study/</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroME</span></a></p>
Tom Kindlon<p>2/</p><p>From presentation: "Through an illuminating blend of life transcription & deep imaginative projection, he shows how placing fiction into the stories of our damaged lives can remind us of who we are & who we might have been, even when so much of us has been taken away by illness"</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroME</span></a></p>
Tom Kindlon<p>4/</p><p>"We need to be vigilant and educated to spot this charlatanry. We need therapeutic treatments that actually work and stop gaslighting those with post-acute viral disease."</p><p><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroME</span></a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ME</span></a> <a href="https://disabled.social/tags/MyE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyE</span></a> <a href="https://disabled.social/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>millionsmissing</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>longhaulers</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>COVIDBrain</span></a> </p><p><span class="h-card" translate="no"><a href="https://mastodonapp.uk/@LongCovidAdvoc" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>LongCovidAdvoc</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>A series of online workshops are running this summer for researchers, health professionals and people with ME, with the aim to raise the profile of <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> clinical research, increase collaboration, attract new researchers & formulate research priorities</p><p><a href="https://meassociation.org.uk/2024/05/research-working-together-to-find-answers-to-me-cfs/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">meassociation.org.uk/2024/05/r</span><span class="invisible">esearch-working-together-to-find-answers-to-me-cfs/</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p><p><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroME</span></a></p>
Irish ME/CFS Association<p>18/</p><p>May is Myalgic Encephalomyelitis (M.E.) Awareness Month.</p><p>You can help by sharing and/or liking this image. </p><p>Day #18</p><p><a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <a href="https://mastodon.ie/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mecfs</span></a></p>
Tom Kindlon<p>The PACE trial: This $8 Million Medical Trial Is A Joke</p><p><a href="https://youtu.be/bzh8pT-g9v0?si=lKaPgE89O297zJad" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">youtu.be/bzh8pT-g9v0?si=lKaPgE</span><span class="invisible">89O297zJad</span></a></p><p>YouTuber and behavioural scientist Pete Judo presents the infamous <a href="https://disabled.social/tags/PACEtrial" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PACEtrial</span></a> which he describes as "what is possibly the worst medical trial in modern history. (contd)”</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> </p><p>1/</p>
Irish ME/CFS Association<p>7/</p><p>May is Myalgic Encephalomyelitis (M.E.) Awareness Month.</p><p>You can help<br>by sharing and/or liking this image.</p><p>Day #7</p><p><a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a><br><a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/MyE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyE</span></a> <a href="https://mastodon.ie/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>From X:</p><p>Recruitment for our recent Mason-funded ME/CFS biomedical study in VIC, Australia is LIVE! Please get in touch if interested or have questions. Some more info: <a href="https://docs.google.com/document/d/1-2H8pkgqrPRG_YLuda5au0_kdH69Xktr/edit?usp=sharing&ouid=106411990730824976565&rtpof=true&sd=true" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">docs.google.com/document/d/1-2</span><span class="invisible">H8pkgqrPRG_YLuda5au0_kdH69Xktr/edit?usp=sharing&ouid=106411990730824976565&rtpof=true&sd=true</span></a><br>We're doing home visits for severely ill people.</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p><p><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroME</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/Victoria" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Victoria</span></a> <a href="https://disabled.social/tags/Science" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Science</span></a></p>
Irish ME/CFS Association<p>🧵</p><p>May is Myalgic Encephalomyelitis (M.E.) Awareness Month.</p><p>You can help by reposting and/or liking this image.</p><p>Day 1</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p><p><a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://mastodon.ie/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://mastodon.ie/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://mastodon.ie/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://mastodon.ie/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroME</span></a> <a href="https://mastodon.ie/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ME</span></a> <a href="https://mastodon.ie/tags/MyE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyE</span></a> <a href="https://mastodon.ie/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>millionsmissing</span></a></p>
Tom Kindlon<p>One week to go to Dublin event.</p><p>I wouldn’t have the energy for the whole event so plan to come in just before the chat over free tea/coffee/water & biscuits. Do say hello if you see me. 👋</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p><p><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFIDS</span></a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SEID</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroME</span></a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ME</span></a> <a href="https://disabled.social/tags/MyE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyE</span></a> <a href="https://disabled.social/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>millionsmissing</span></a></p>
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