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Tom Kindlon2/Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath<a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#NeuroME</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#longcovid</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a>

Tom Kindlon2/ From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team <a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf" rel="nofollow noopener" translate="no" target="_blank">https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf</a><a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#SEID</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#PostCovidSyndrome</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#postcovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> @longcovid <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a>

Salty Daddy 🏳️‍🌈 🇺🇦 ✡️LOOK AT THESE MEEPS. LOOK AT THEM! <a href="https://fouroclockfarms.club/tags/Meeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#Meeps</a> <a href="https://fouroclockfarms.club/tags/PinkNose" class="mention hashtag" rel="nofollow noopener" target="_blank">#PinkNose</a> <a href="https://fouroclockfarms.club/tags/PinkBeans" class="mention hashtag" rel="nofollow noopener" target="_blank">#PinkBeans</a>

Tom Kindlon2/From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team <a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf" rel="nofollow noopener" translate="no" target="_blank">https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf</a><a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#SEID</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#PostCovidSyndrome</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#postcovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a>

Tom Kindlon2/Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath.<a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#NeuroME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a>

Der zweiköpfige PuffinIch hab mir auf der <a href="https://brettspiel.space/tags/Spiel24" class="mention hashtag" rel="nofollow noopener" target="_blank">#Spiel24</a> die 3 Farbsets von <a href="https://brettspiel.space/tags/Squidmar" class="mention hashtag" rel="nofollow noopener" target="_blank">#Squidmar</a> und <a href="https://brettspiel.space/tags/Vallejo" class="mention hashtag" rel="nofollow noopener" target="_blank">#Vallejo</a> gegönnt. Zum Testen hab ich einen kleinen <a href="https://brettspiel.space/tags/Meeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#Meeps</a> mitgenommen. Ist ganz gut geworden und hat viel Spaß gemacht.

Tom Kindlon2/A pilot cross-sectional investigation of symptom clusters & associations with patient-reported outcomes in <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> / <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> & <a href="https://disabled.social/tags/PostCOVID19" class="mention hashtag" rel="nofollow noopener" target="_blank">#PostCOVID19</a> Condition"None of the four symptom clusters identified were unique to ME/CFS or <a href="https://disabled.social/tags/PCC" class="mention hashtag" rel="nofollow noopener" target="_blank">#PCC</a>"<a href="https://link.springer.com/article/10.1007/s11136-024-03794-x" rel="nofollow noopener" translate="no" target="_blank">https://link.springer.com/article/10.1007/s11136-024-03794-x</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#postcovid</a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener" target="_blank">#postcovid19</a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener" target="_blank">#LC</a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Covidlonghaulers</a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#PostCovidSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#SEID</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#NeuroME</a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#ME</a> <a href="https://disabled.social/tags/MyE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyE</a> <a href="https://disabled.social/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#millionsmissing</a>

Tom Kindlon4/ One with full color, with no background music <a href="https://www.youtube.com/watch?v=00f6Yx9ab3I" rel="nofollow noopener" translate="no" target="_blank">https://www.youtube.com/watch?v=00f6Yx9ab3I</a><a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a>

Tom KindlonA useful resource for people who like to listen to articles: @actionforme's InterAction magazine articles can be listened to online by anyone for free here <a href="https://soundcloud.com/actionformeaudio" rel="nofollow noopener" translate="no" target="_blank">https://soundcloud.com/actionformeaudio</a><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyE</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a>

Tom Kindlon4/“That said, everything I did took energy. Washing my teeth, energy. Dressing, energy. And there was no bank to run to asking for a loan. No friend with a basket of extras.”<a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a>

Tom KindlonFrom: @NotjustfatigueIs it a coincidence that three times more women than men are living with <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> and <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> is our country’s most underfunded disease, with respect to the severity of disease and the number of people affected? No. This is the seventh video in a ten part video series by <a href="https://disabled.social/tags/NotJustFatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#NotJustFatigue</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#SEID</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#NeuroME</a>1/

Tom Kindlon2/Elizabeth has posted this video already on her <a href="https://disabled.social/tags/Notjustfatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#Notjustfatigue</a> social media accounts & has kindly given me permission to share it on some other social media platforms I'm on. Please do check out the website for her non-profit <a href="https://disabled.social/tags/Notjustfatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#Notjustfatigue</a> <a href="https://www.notjustfatigue.org" rel="nofollow noopener" translate="no" target="_blank">https://www.notjustfatigue.org</a>Hashtags: <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#SEID</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#NeuroME</a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#ME</a> <a href="https://disabled.social/tags/MyE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyE</a> <a href="https://disabled.social/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#millionsmissing</a>

Irish ME/CFS AssociationJust one week to go with Lee Colligan’s marathon 2500km walk around Ireland in memory of his brother and in aid of ME. People can donate to us at <a href="https://www.idonate.ie/fundraiser/LeeColligan" rel="nofollow noopener" translate="no" target="_blank">https://www.idonate.ie/fundraiser/LeeColligan</a>Donation link for Action for ME <a href="https://joshcolligan.muchloved.com/" rel="nofollow noopener" translate="no" target="_blank">https://joshcolligan.muchloved.com/</a><a href="https://mastodon.ie/tags/SevereME" class="mention hashtag" rel="nofollow noopener" target="_blank">#SevereME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://mastodon.ie/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://mastodon.ie/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://mastodon.ie/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://mastodon.ie/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#SEID</a> <a href="https://mastodon.ie/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#NeuroME</a> <a href="https://mastodon.ie/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#millionsmissing</a> <a href="https://mastodon.ie/tags/EndMECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EndMECFS</a> <a href="https://a.gup.pe/u/severeme" class="u-url mention" rel="nofollow noopener" target="_blank">@severeme</a>

Tom Kindlon2/ More info on this Open Medicine Foundation Australia project: "SPOT-ME: Serial Pediatric Omics Tracking for ME/CFS"Aims include deeply profiling the biology of patients vs controls, testing cellular energy metabolism changes and evaluating brain function with MRI.<a href="https://www.omfaustralia.ngo/pediatrics-me-cfs-deep-omics-profiling-and-longitudinal-study/" rel="nofollow noopener" translate="no" target="_blank">https://www.omfaustralia.ngo/pediatrics-me-cfs-deep-omics-profiling-and-longitudinal-study/</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#SEID</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#NeuroME</a>

Tom Kindlon2/From presentation: "Through an illuminating blend of life transcription & deep imaginative projection, he shows how placing fiction into the stories of our damaged lives can remind us of who we are & who we might have been, even when so much of us has been taken away by illness"<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#SEID</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#NeuroME</a>

Tom Kindlon4/"We need to be vigilant and educated to spot this charlatanry. We need therapeutic treatments that actually work and stop gaslighting those with post-acute viral disease."<a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#SEID</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#NeuroME</a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#ME</a> <a href="https://disabled.social/tags/MyE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyE</a> <a href="https://disabled.social/tags/millionsmissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#millionsmissing</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#postcovid</a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener" target="_blank">#postcovid19</a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener" target="_blank">#LC</a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#Covidlonghaulers</a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#PostCovidSyndrome</a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#longhaulers</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#PASC</a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener" target="_blank">#COVIDBrain</a> <a href="https://mastodonapp.uk/@LongCovidAdvoc" class="u-url mention" rel="nofollow noopener" target="_blank">@LongCovidAdvoc</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a>

Tom KindlonKatie Johnstone:I did a presentation on BACME, the British Association of Clinicians in <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a>. BACME has great influence on the treatment of people with ME, yet they cling to outdated & harmful ideas.<a href="https://youtu.be/9_Ee7HGd1Ng?si=UqGx_OA832vTxaTv" rel="nofollow noopener" translate="no" target="_blank">https://youtu.be/9_Ee7HGd1Ng?si=UqGx_OA832vTxaTv</a>I haven’t watched so far but has seen some praise for it<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a>

Tom KindlonA series of online workshops are running this summer for researchers, health professionals and people with ME, with the aim to raise the profile of <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> clinical research, increase collaboration, attract new researchers & formulate research priorities<a href="https://meassociation.org.uk/2024/05/research-working-together-to-find-answers-to-me-cfs/" rel="nofollow noopener" translate="no" target="_blank">https://meassociation.org.uk/2024/05/research-working-together-to-find-answers-to-me-cfs/</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#SEID</a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener" target="_blank">#NeuroME</a>

Irish ME/CFS Association17/May is <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> / <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> (<a href="https://mastodon.ie/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a>) Awareness Month.Please help by sharing +/or liking this 6-minute Paper Stop-motion Animation About ME/CFS <a href="https://www.youtube.com/watch?v=dUrPFqGONM8" rel="nofollow noopener" translate="no" target="_blank">https://www.youtube.com/watch?v=dUrPFqGONM8</a><a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://mastodon.ie/tags/MyE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyE</a> <a href="https://mastodon.ie/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a>

Tom KindlonThe PACE trial: This $8 Million Medical Trial Is A Joke<a href="https://youtu.be/bzh8pT-g9v0?si=lKaPgE89O297zJad" rel="nofollow noopener" translate="no" target="_blank">https://youtu.be/bzh8pT-g9v0?si=lKaPgE89O297zJad</a>YouTuber and behavioural scientist Pete Judo presents the infamous <a href="https://disabled.social/tags/PACEtrial" class="mention hashtag" rel="nofollow noopener" target="_blank">#PACEtrial</a> which he describes as "what is possibly the worst medical trial in modern history. (contd)”<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFSME</a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEeps</a> <a href="https://disabled.social/tags/CFIDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFIDS</a> <a href="https://disabled.social/tags/SEID" class="mention hashtag" rel="nofollow noopener" target="_blank">#SEID</a> 1/

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